Celine Dion, a singer, revealed that she has received a diagnosis for the illness that has forced her to cancel and reschedule gigs over the past year.
The “My Heart Will Go On” singer revealed in a sad social media message on Wednesday that she had stiff-person syndrome, a rare and incurable neurological disorder that causes severe muscle spasms and stiffening in the limbs.
In a tearful Instagram video that she released in both her native French and English, Dion said, “Unfortunately, these spasms influence every area of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal chords to sing the way I’m used to.”
Due to what she previously termed as “severe and recurrent muscle spasms,” 54-year-old Dion has routinely delayed and cancelled performances over the past year.
When the epidemic hit in 2020, Dion was in the middle of a protracted musical tour. It was ultimately supposed to resume in February with 50 additional events, however eight of those have been cancelled and 23 have been moved until 2024.
Growing emotional, Dion remarked, “All I know is singing. “I’ve spent my entire life doing it, and it’s what I most enjoy doing.”
Stiff-person syndrome is a neurological illness having characteristics of an autoimmune disease, according to the National Institute of Neurological Disorders and Stroke, a branch of the National Institutes of Health.
Spasms and “fluctuating muscle rigidity” brought on by stimuli like loud noise, extreme cold, or quick movement are symptoms of the disease. Falls that could cause additional injuries can be exacerbated or caused by the spasms.
“The disease is characterised by abnormal postures, which are frequently bent over and tensed. Because street noises, like the sound of a horn, can cause spasms and falls, people with SPS may be unable to walk or move, or they may be reluctant to leave the house “says the institute.
Rarely occurs stiff-person syndrome. The Johns Hopkins School of Medicine claims that it only affects “one or two in a million people.”
According to the NIH, researchers don’t fully understand the causes of the disorder, but they speculate that an autoimmune condition in the brain or spinal cord may be to blame. Antibodies that are directed against an enzyme that produces a crucial neurotransmitter in the brain are more prevalent in people with SPS.
Although the condition cannot be cured, experts claim that medication with muscle relaxants and anti-convulsants can help to lessen and manage symptoms.
Dion stated in her declaration that she is getting support from her three children and that she thinks she is on the road to recovery.
To regain my strength and my capacity to perform on a daily basis, I work diligently with my sports medicine therapist, she claimed. However, I must admit that it has been difficult.
One of the greatest vocalists of all time is Dion. She has sold more than 200 million records worldwide and had several hits, including “My Heart Will Go On,” “The Power Of Love,” and “It’s All Coming Back To Me Now,” reach No. 1 on the Billboard charts. Her lengthy Las Vegas residencies have been among the most successful ever.
In 2023, the singer was slated to start a new residency at Resorts World Las Vegas. It’s unclear when that residence, which has also been delayed numerous times since 2021, would start. In May, when “Love Again,” a romantic comedy starring Priyanka Chopra, is set for release, she will also make her acting debut.
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